I am posting information from Terri's sisters blog. This is info from over the weekend and a doctors appt. they went to today.
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This is from Friday:
Melissa and John went to the doctor yesterday for a routine ultrasound and to find out the sex of the baby. The baby is a girl but they found out that she has anencephaly. This is a fatal birth defect that is caused when the neural tube doesn't close over the top of her head. This means that the baby's brain will not develop and she doesn't have a developed skull. From what I've looked up, it is like spina bifida at the other end of the body. Melissa and John are at the beginning of some serious decisions. They are going to Macon on Monday to talk to a specialist - the specialist will shed some light hopefully on what their next steps should/could be. Please pray for them and all of us. Kayden is being a great uplift to all of us. I flew home yesterday and will be here until I feel it's time to go back. comments are appreciated but it seems every time we talk about it or have to explain it to someone, we get bogged down emotionally. Thanks for your prayers.
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This is from Sunday:
It's me again .... I just wanted everyone to know that Melissa and John picked out a name for the baby. Janey Hicks! - It's kind of a mix between Janice (John's mom) and Cathy (mine and Melissa's mom). It might stay just Janey - she doesn't seem to need a middle name with a first name that cute :) Melissa and John are going to Macon tomorrow. I will update after they get back. John's parents are driving down tomorrow from Memphis so keep them in your prayers. Thanks for all the encouragement - There are so many of you that have been in tough situations and Melissa needs your prayers now. There will probably be time in the future to share your stories with her, but for now, it's enough just to tell her you care. Thanks to everyone for their understanding in this. If you would like to ask me questions or tell your story, feel free to email me. I can relay your stories to Melissa when they become relevant. Thanks again - Terri (Melissa's sister)
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This was posted earlier today:
Melissa and John went to Macon today to visit with a specialist. They received much of the same information as their regular doctor had told them. Melissa will have to be on Folate for the remainder of her child-bearing years. The doctor spelled out all of the options for Melissa and John and baby Janey. The prognosis is still the same so please remember them in your prayers. John's parents left Memphis at 2 a.m. and were at the doctor before Melissa and John got there. They are traveling back here right now. I talked to Melissa and although she wants to talk to all of you, she is exhausted - emotionally and physically so please- no calls at this time. Thanks for all your prayers and we will update as soon as we know more. - Terri (Melissa's sister)